On Tuesday, February 28th, 2017, the Einstein Victor Center will be participating in Rare Disease Day. Rare Disease Day is an international effort to bring awareness to diseases which affect small percentage of the population. According to www.RareDiseaseDay.org, this is defined in the United States as diseases which affect less
Interesting articles from the New York Times In early December, 2016, Congress passed the 21st Century Cures Act, a sweeping health measure designed to bring funding and changes to numerous areas of healthcare. The Precision Medicine Initiative, which was included in the bill, aims to use genetic information to research
Einstein Victor Center for the Prevention of Jewish Genetic Diseases Advises: Get Your Inside Story By Jeff Meade Screening for Tay-Sachs—a fatal neurological disease affecting young children—has been widely embraced within the Jewish community for decades and is regarded as one of the true success stories in the field of
Janice Edwards, Professor and Director of the University of South Carolina School of Medicine’s Genetic Counseling Program, first experienced work with Jewish genetic disease screening in 1983, when the local Jewish Community Center hosted a Tay-Sachs screening. Her professional focus has for years been on prenatal and preconception genetic health,
The Einstein Victor Center for the Prevention of Jewish Genetic Diseases has partnered with Boston Medical Center’s Department of Pediatrics/Division of Genetics and the University of South Carolina School of Medicine’s Genetic Counseling Program to support local outreach and education programs pertaining to Jewish genetic diseases. This expansion of programming
The Einstein Victor Center is pleased to announce the addition of William A. (Andy) Faucett, M.S., L.G.C. and Rebekah S. Rasooly, Ph.D. to our Advisory Committee. The National Advisory Committee of the Victor Center provides strategic guidance in the development and evaluation of our efforts. Our advisors promote the mission of the Victor Center and recommend strategies to advance the landscape of preconception healthcare and education.
While breakthroughs in digital technology have expanded our ability to access and share a universe of virtual data, advances in genetic technology have expanded our access to a world of vital genetic information.
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