Cindy’s Story

A Mom and an Advocate

Her life changed in 1996, the day Dylan was born. Back then, doctors told Cindy her concerns about her baby’s health were nothing more than the fears of a new mom. Cindy knew better. A few months later, Dylan was diagnosed with an incurable disease called Familial Dysautonomia (FD).

Dylan was born five years before FD testing became available. It’s now a routine part of the Ashkenazi Jewish screening panel. Through the years, Cindy has turned despair into dedication. A speaker and advocate, she educates others about Jewish genetic diseases and the importance of carrier screening before pregnancy.

Despite her family’s experience, Cindy tells every audience: “We love Dylan more than we hate the disease.”

Our deepest condolences go out to the Singer family as they mourn the passing of their son Dylan. We thank the Singers for their tireless efforts to raise awareness about Jewish genetic diseases. Our thoughts are with them during this difficult time.
The family has established the Dylan Singer Fund for Jewish Genetic Disease Education to continue Dylan’s legacy.

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